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ALS patients, caregivers, and advocates with Senators Mike Braun and Lisa Murkowski at the 2020 More Than Our Stories advocacy conference.

Project ALS Endorses New ALS Legislation

Project ALS is encouraged by the introduction of two bills that aim to provide people with ALS faster, more robust access to experimental therapies. These bills are significant for specific, substantive reasons detailed below. Perhaps as importantly, they represent a …

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A COVID-19 Research Update

Dear Friends, Project ALS is acutely aware of the unimaginable circumstances that Americans and people around the world are now facing. Our hearts, souls, and minds are heavy with the dire situation that ALS patients, family members, and loved ones …

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Valentine for a Pioneer

“Jaci is blazing a path that hopefully will not just cure her but set a course of treatment for countless others.” – Lori Hermstad, mother. February 14th is a significant day for the Hermstad family. On this day in 2011, …

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Online Campaigns

Don't Talk-A-Thon ALS Research Campaign

Don’t Talk-a-Thon

Since 2014, Project ALS has run an online campaign, the Don’t-Talk-a-Thon, during the month of May, in honor of ALS Awareness Month. For one day each year, supporters take a vow of silence to honor those who are robbed of …

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Wine & Design ALS Fundraiser Event

Wine & Design

Project ALS has partnered with Wine & Design, the awesome paint and sip franchise. During ALS Awareness month in May 2017 and 2018, Wine & Design donated the proceeds of studio classes in 80 locations nationwide, along with an online …

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