Doctors and scientists agree: ALS is coming for us. As our population ages, so are Parkinson’s, Alzheimer’s, and Huntington’s diseases. In fact, if we do nothing, by the year 2025, 1 in 25 American adults will be diagnosed with a neurodegenerative disease. That means you…a member of your family…colleagues…friends.
While the world is making incremental progress toward understanding the human brain—the most complicated organ—Project ALS is concerned that research science is not working quickly enough to produce effective medicines and treatments for brain diseases.
Project ALS has four main goals in 2017:
(1) Raise Money for Promising Ongoing Research. One example of promising ongoing research is stem cells. Project ALS scientists now use stem cells to model human ALS in a dish. This ALS stem cell model allows us to test drugs faster.
(2) Push Personalized Genetics. Each person has his or her unique DNA. As technology explodes—in a good way—we will use 2017 to identify the genes responsible for ALS in each person with the disease. Deep genetics analysis may result in individualized approaches to ALS therapy.
(3) Secure #1 Draft Picks. Project ALS will continue to draft the world’s best and brightest researchers, scientists, businesspeople, and donors to ALS fundraising and research. We will organize our research efforts for maximum productivity.
(4) Reach You. Neurodegenerative diseases are a world health crisis that no one talks about. Please speak up. Write or call us with ideas for research and fundraising. As my friend, the geneticist and neurologist Bob Brown says, “We are drowning in a sea of plenty.” 2017 is the year for us to tap our resources, riches, and ingenuity—and solve a problem that will touch us all.