CAPS KIDS for the TCS New York City Marathon

paul marathon

Our Mom, Carol Ann Paul, was diagnosed with ALS on September 25, 2012. Her diagnosis came after roughly three years of watching her decline without explanation. It started with numbness in her hands, then difficulty walking, which soon turned to … READ MORE ›

Team McLaren for the TCS New York City Marathon

2014 Team McLaren with Kim McLaren

The Aurora, IL community continues to remember both Dr. Eric McLaren and his passion for Project A.L.S.  Eric lost his battle with ALS this past summer, and we miss him very much. Pat Roney is training for his third New York City Marathon; … READ MORE ›

Quinn For The Win


I was a young, athletic 28 year old who just finished winning a softball tournament. Everything should have been great, but it wasn’t. The very next day I noticed my arm twitching. This twitching has never stopped and continues to … READ MORE ›

News From Belly Button Beach

Boynton's Hippopotamus

I have a very personal connection to Lou Gehrig’s disease: my fabulous sister Judy had it, and died ten years ago. During her illness, I was fortunate to get to know the tireless and brilliant Estess sisters and the extraordinary … READ MORE ›

The Most Important Ice Bucket Challenge Video You’ll See

We know the devastation of ALS first hand. Our sister, Jenifer Estess, was diagnosed with ALS, seemingly out of nowhere, at age 35. We started Project A.L.S. together, as a family, with our friends, because we wanted more results from medical research. … READ MORE ›